na Angie Shiflett
He nui nā mākua i aʻo i ka hopena o kā lākou keiki he pilikia olakino, maʻi, a i ʻole ke kīnā. He manawa hoʻonāwaliwali kēia no ka ʻohana. ʻIke wau, no ka mea, ua hele au ma laila. Ua hānau ʻia kaʻu keikikāne me ka liʻiliʻi o ke kino. Ua kapa ʻia e nā kauka he "lehelehe unilateral cleft lehelehe". Ua hōʻike mai lākou iaʻu e koi ana ʻo ia i ka mālama a me ka nānā ʻana o nā loea he nui i kona wā kamaliʻi, a pono ʻo ia e hana i ka ʻoki plastik ma kahi o ʻekolu mahina o kona mau makahiki. ʻAʻole loa au i manaʻo e hānai au i kahi keiki i loaʻa ke kūlana e like me kēia, akā ua manaʻoʻiʻo mau wau ʻoiai ʻo ka mea e hiki mai ana me kā mākou mau keiki, aloha wau iā lākou. Maʻaneʻi, hāʻawi wau i kaʻu ʻike i ka wā e pili ana i ka mālama ʻana i kahi keiki me nā pono kūikawā.
ʻO ka ʻōlelo aʻoaʻo mua e hiki iaʻu ke hāʻawi iā ʻoe ma muli o kaʻu ʻike pilikino, ʻo ka mālama ʻana i kahi keiki me nā pono kūikawā ʻaʻole ʻokoʻa loa ma mua o ka mālama ʻana i kahi keiki ʻaʻole koi i nā lāʻau lapaʻau hou, loiloi, a me nā loea. He ʻumikumamāhiku mahina ma hope o kaʻu hānau ʻana i kaʻu keiki mua, ua hānau kaʻu keiki kāne ʻelua. Ua hānau ʻia kēia keiki me ka ʻole o ke kino a me ke olakino maikaʻi loa. I kēia manawa, e ʻae wau ua hopohopo nui au i koʻu hāpai ʻana ʻelua. Manaʻo wau he mea maʻamau ia no ka hapa nui o nā mākua i loaʻa kahi keiki me nā pono kūikawā. Loaʻa iā ʻoe nā kuleana āpau e hopohopo no ke olakino a me ka palekana o kāu keiki - ʻaʻohe hewa i kēia.
ʻAʻole au e poina i ka hui ʻana me ka Craniofacial Team no ka manawa mua. He ʻike koʻikoʻi kēia, a pau ka lā. Nui nā kauka like ʻole ma kēia hui. Loaʻa iā mākou he hui o dentist 'oihana, he hui o Plastic Surgeons, he Pediatrician, he Ear, Nose, and Throat Specialists a me ka Social Worker a me ka Psychologist ma ka hui. ʻAʻole maopopo iaʻu i ka hana holoʻokoʻa o ka Social Worker a me Psychologist, akā ua haʻi ʻia ʻo ka nui o kaʻu keikikāne aia paha nā pono pilikanaka a noʻonoʻo pono e hoʻoponopono ʻia a ʻo ia ke kumu i hoʻokomo ai lākou i kēia poʻe ma ka Craniofacial Team e hana pū ana me. ia ia i kona ola ana. Hāʻawi lākou iaʻu i ka mālama ʻana e pono ai ʻo ia ma muli o kāna hihia kūʻokoʻa a laila haʻi mai iaʻu e hana lākou i kāna ʻoki mua ma kahi o ʻelua a me ka hapa mahina.
I ka hiki ʻana mai o ka lā o kaʻu keiki ʻoki lehelehe māwae, E hoʻomanaʻo wau ʻo ia nā lā paʻakikī a paʻakikī loa o koʻu ola. Ma koʻu poʻo, ʻike wau ʻo ia ka mea maikaʻi loa nona. Eia naʻe, pono lākou e hana hou i ka waha a me ka ihu. Ua aloha au iā ia e like me kona ʻano, a ʻaʻole maopopo iaʻu inā hiki iaʻu ke hoʻololi i ka loli. ʻIke wau i ke kani ʻana i ka manaʻo ponoʻī i kahi ākea, akā ʻoiaʻiʻo, ke loaʻa kāu keiki - aloha ʻoe iā lākou ʻoiai ke ʻano o ko lākou ʻano ma waho. Eia naʻe, ua pilikia kona ʻokoʻa craniofacial i ka hānai ʻana, a ua ʻike wau i loko o koʻu puʻuwai e hiki mai ana i kona ola ʻana inā ʻaʻole mālama pono ʻia. Ua hoʻomau mākou, a ua hoʻopau lākou i ka hana - nani.
I kēia lā, ʻehiku makahiki o kaʻu keiki. Ua loaʻa iā ia nā pilikia liʻiliʻi ma muli o ka lehelehe unilateral cleft. ʻEono makahiki kaʻu keiki muli loa. Ua kokoke e pau ka papa mua, a ʻaʻohe pilikia. Ke koho nei mākou i ke kula home i kā mākou mau keiki. ʻO kekahi o nā kumu nui inā pono ka mea kahiko i ka mālama olakino a i ʻole ka nānā ʻana no kāna mau pono; hiki iā mākou ke kamaʻilio iā lākou a loaʻa ka maʻalahi i kā mākou papa hana i mea e hana ai - me ka ʻole o ka haʻalele ʻana i kāna mau haʻawina. Eia naʻe, ʻaʻole ia he pilikia i kēia manawa. Nui nā kumu ʻē aʻe e kula ai mākou i kā mākou mau keiki, akā ʻo ia kekahi o nā kumu nui.
ʻAʻole ʻokoʻa ka mālama ʻana i kahi keiki me nā pono kūikawā ma mua o ka mālama ʻana i kahi keiki ʻaʻohe pono kūikawā. ʻAe, pono wau e ʻōlelo ʻaʻole pono. Ma ka hōʻailona ʻana iā ʻoe iho ma ke ʻano he makua me kahi "pono kūikawā", ke ʻae nei ʻoe iā ʻoe iho e wehe ʻia i ka nui o nā hoʻopiʻi manaʻo. Mai nana oe he "pa'i"; e nānā wale aku iā ia he "pōmaikaʻi". Nui nā poʻe o ka honua hiki ʻole ke hāpai, a manaʻo lākou he laki lākou i ka hana ʻana i kahi keiki pono kūikawā - ʻaʻole anei ʻoe e manaʻo pēlā? Makemake wau!
Pilikanaka:
He loea maʻiʻo ʻo Angie Shiflett e kālele ana i ke kākau ʻana ma nā ʻano kumuhana. I kēia manawa, ʻo kona makemake i ka homeschooling. Ua aʻo ʻo ia i kāna mau keiki ma o The Connections Academy no ʻelua makahiki i kēia manawa. Hiki iā ia a me kāna kāne ke noho ma ka home me kā lāua mau keiki i mea e hoʻonaʻauao ai iā lākou. Hāʻawi lākou i ka manaʻo nui i ka ʻohana, a me ka hoʻolaʻa ʻana i ke koʻikoʻi o ka hoʻonaʻauao kūpono. Loaʻa paha iā ʻoe nā ʻatikala ʻē aʻe na Angie Shiflett ma ke kipa ʻana: http://www.ehow.com/members/ashiflett.html
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Mahalo no kou komo ʻana i kēia pule Carnival of Family Life ma ka hāʻawi ʻana i kēia pou! Aia ka Carnival ma ʻAʻole no ka ʻaina kakahiaka i kēia pule a e ola ʻia ma ka Pōʻakahi, Mei 19, 2008, no laila e hele a nānā i kekahi o nā ʻatikala maikaʻi loa i komo i kēia paʻi!